chiappettas

Wednesday, April 6, 2011

Look at me! I am actually sitting up by myself for a few seconds with the help of my boppy. I have been starting this new thing where I like to try and pull myself up. I pulled myself into this position all on my own from being layed back on the boppy pillow. Mommy caught me like this when she came out from starting laundry. Can't leave me alone too long. :-) I still have a long long way to go but it's a start and I just keep on trying to sit myself up. Mommy had me just on the pillow the other day and I was still trying to sit myself up. I can at least get my shoulders off the pillow when I'm laying down like that. Also the funny thing was too I thought mommy was going to have a cow for a second because I was on my side and all of a sudden from the side position I picked up my whole head and held it there for a bit. She told me that's how I learn to roll over by getting my head up like that but we will see what happens. How do you like that miss former OT? :-)

Tuesday, April 5, 2011

Crazy Legs

Sometimes mommy finds me in the crazy positions where I like to bend or cross my legs. That is actually very good for me that I can do that on my own. And since I'm just so cute it's always worth a picture. :-)

My Cuteness

More Mohawk

Tuesday, February 8, 2011

Mowhawk 2

I wanted to celebrate and honor daddy's birthday by having mommy give me another mohawk. I am just one cool dude now! Daddy would absolutely love it.

Thursday, February 3, 2011

Hey Everyone. I know that it has been a really really long time since I have actually written on here so I thought I would sit down with mommy and update you all a little bit. I am still doing pretty good. The main thing that I have been dealing with is getting a sinus infection and I have been having quite a few more seizures in the past couple of months. After some bloodwork and phone calls and the helpful hospice Dr. and nurses we have been allowed to increase my topomax a little bit. If after a little bit that doesn't seem to help then we can increase it a little bit more and then if that is still not working then another seizure medicine will have to be added. Mommy and I are praying that this little increase in topamax will help. I have been on the 1st new dose for about a week now and it seems to be doing ok. I'm sure it's fun for mommy though because one day I may sleep all day and the next I might be awake all day or else awake and asleep. Not like she can plan her day ahead of time with me anyways 'cause you never know what to expect but then to throw in the whole maybe I'll sleep one day and be awake the next and give her a hard time I'm sure can be pretty tough sometimes. But she handles it very well and is just learning to go with it. :-) I do love my mommy that's for sure! Well again that is what has been happening recently and so hopefully I can get back to doing this a little more often.

Bundle of Cuteness

Wednesday, January 12, 2011

This is my new swing! It goes from side to side or mommy can turn it around and it will swing back and forth. I really like it. This swing came from one of daddy's friends up in CT. I am so thankful that daddy had some really good friends it seems. I don't even know most of them but I'm glad they still think of me and mommy. Daddy would be glad to know that his friends really are true friends. So I am thankful today for this new swing. It really helps calm me down and sometimes I do like the side to side and sometimes back and forth. Now mommy has options instead of having to hold me all the time. It really helps too when I am having some rough seizure episodes. So again I say thank you to daddy's friends. Daddy would be proud.