Hi, my name is David Joseph Chiappetta and I was born on July 27, 2007. I was born with something called holoprosencephaly and it means that my brain was not divided and I don't really have much of a brain. I do have a brain stem which controls my heart and lungs so that's good. My hypothalamus doesn't work either though so I can get either really hot or really cold very easily and quickly. Mom and Dad have to be my thermometer for me though which keeps them pretty busy at times. I also have a feeding tube in my stomach so I can eat since I can't swallow and I have a trache so I can breathe since I only have one nostril and it's blocked. Mom and dad have to suction me out too since I get mucuous buildup and have acid reflux. Sometimes I can keep them busy with that too. I also have Diabetes Insipidus which is a water issue and so I have to be given a certain amount of water with my medicines. If my sodium level is too high then that will cause me to have more seizures as well as if my temperature gets too high. I already have a seizure condition because of my lack of brain so some things can make it more complicated like high temperature and high sodium. See, my normal temperature range is 94 degrees to 97 degrees. Anything above that can cause me to have more seizures. See, I told you I keep my parents busy. :-) The doctors said though that I may not make it to birth and if I did I would only live a month or so. They also said that I will not be able to talk or walk or crawl or any of those normal baby things. Well, I'm here to tell you that I am4 years old now and I am learning to pick my head up when on my tummy! I'm also learning to put some weight on my legs and I laugh and smile. Cool huh? I just wanted to add that although you see mom and dad in the description above...it has just been mommy and me for a while now since daddy passed away in January of 2010.

Wednesday, January 12, 2011

This is my new swing! It goes from side to side or mommy can turn it around and it will swing back and forth. I really like it. This swing came from one of daddy's friends up in CT. I am so thankful that daddy had some really good friends it seems. I don't even know most of them but I'm glad they still think of me and mommy. Daddy would be glad to know that his friends really are true friends. So I am thankful today for this new swing. It really helps calm me down and sometimes I do like the side to side and sometimes back and forth. Now mommy has options instead of having to hold me all the time. It really helps too when I am having some rough seizure episodes. So again I say thank you to daddy's friends. Daddy would be proud.

Wednesday, January 5, 2011

A First

For the very fist time i actually held onto something other than a finger. In vision therapy this week i was able to hold this pinwheel as well as look at it!

Absolute Cuteness

Huge Peppermint Fun

Little Santa