Hey There Everybody! I know it's been a long while since I have talked and updated everyone. So sorry about that but things around here just get so busy sometimes that I don't allow mommy so much time to update. :-) We have pretty much been just hanging out here at home especially since it's flu season and the swine flu and all going around. I can pick up something very quickly so we have been cozy here at home. This was actually the first Sunday in such a long time that mommy and daddy actually got to go to church. I am still being weaned off my phenobarb and still have until February so my sleep has still been very messed up. Mommy and daddy and I are really hoping and praying that when I get off the phenobarb that I will get into a good sleep pattern. Daddy has still been looking for work too and the bad part about it is the fact that mommy has to call Johns Hopkins in the morning because we no longer have insurance for me through daddy's work so Hopkins will probably not take my WV Medicaid but that's why mommy has to call them to see if they will and if they won't then I don't know what we are going to do because that is where the reconstructionist is who has been seeing me about the reconstruction on my nose to hopefully one day get rid of my trach. My ENT is also there so not sure what will happen with all that now. I guess we will find out when mommy calls though. That's pretty much what has been happening around here. Mommy and daddy and I are just hanging out and enjoying each other's company and spending family time and making memories. You can see we've been busy by all the pictures in the posts to follow. :-) We will keep you all updated as things go a long...hopefully it won't be so long in between.

Santa's Little Helper

Christmas

Christmas fun

David and daddy having fun.

David in leaves

Thanksgiving pictures

David dressed up as a horse for Halloween

Aunt Roof and David for Halloween

Hi All, I know it's been a while but it's been crazy around here. I have still been doing well being weaned off my phenobarb! I really haven't had many more seizures in the process either. That is a very good thing. I can't wait until I am no longer on it. :-) Mommy sat down the other week and figured it all out and it will be all done with on February 3 which happens to be daddy's birthday so I guess...happy birthday to daddy then. :-) I get a little fussy for a few days when the dose decreases but then I tend to get used to it and then it will change again and the whole process starts all over. :-) I keep mommy and daddy busy though. I am also believe it or not sleeping a little better now too and am still hoping that once I get totally off the phenobarb maybe I'll sleep even better. I know we are all praying for that. I am just getting over having a nasty cold. I was coughing/wheezing pretty bad so mommy had to use some breathing treatments for a few days and it got much better. I still am rather juicy most times but this thing takes a long time to get rid of...especially when your system is compromised like mine. That's why mommy doesn't get out much or even take me out hardly at all during the Winter time because I could get sick really easily and that wouldn't be good. So we stay pretty cozy. Daddy has also lost his job so he has gotten to be home with mommy and me all day! So...that's what's been goin on recently. Catch everyone later.

Driving Miss Daisy

These were pictures that came about after my OT therapy this week. I was not in a happy mood as you can tell but I guess for mommy and the OT it made for some cute pictures. I had a good hold on that toy and they were joking that I was driving miss daisy. :-) Oh well...whatcha gonna do...I'm so glad I could bring them some enjoyment. :-)

Praying!

Do I need to say more. :-) I am just too cute.

Some of my pj's.

Grandma made my hat...it's nice and warm. :-)

Daddy is starting me off early with learning how to use the remotes for the t.v. Gotta watch me some good Florida and Cowboy football!

Just being cute

Me in my jumparoo

Such a little boy!

Mommy had to snap this picture because after she was done changing my diaper this is how I put myself. It was so funny.

Go Go Go Gators!!!!

Walker Take 2

This is me having fun and moving my walker. I'm getting better. Wait until towards the end when I actually try to stand a little bit in order to move my walker.

Pics

This picture cracked mommy up 'cause I was just laying there so content arms spread straight out to the side.

Somebody's ready for Football season!

My new seat