Hi, my name is David Joseph Chiappetta and I was born on July 27, 2007. I was born with something called holoprosencephaly and it means that my brain was not divided and I don't really have much of a brain. I do have a brain stem which controls my heart and lungs so that's good. My hypothalamus doesn't work either though so I can get either really hot or really cold very easily and quickly. Mom and Dad have to be my thermometer for me though which keeps them pretty busy at times. I also have a feeding tube in my stomach so I can eat since I can't swallow and I have a trache so I can breathe since I only have one nostril and it's blocked. Mom and dad have to suction me out too since I get mucuous buildup and have acid reflux. Sometimes I can keep them busy with that too. I also have Diabetes Insipidus which is a water issue and so I have to be given a certain amount of water with my medicines. If my sodium level is too high then that will cause me to have more seizures as well as if my temperature gets too high. I already have a seizure condition because of my lack of brain so some things can make it more complicated like high temperature and high sodium. See, my normal temperature range is 94 degrees to 97 degrees. Anything above that can cause me to have more seizures. See, I told you I keep my parents busy. :-) The doctors said though that I may not make it to birth and if I did I would only live a month or so. They also said that I will not be able to talk or walk or crawl or any of those normal baby things. Well, I'm here to tell you that I am4 years old now and I am learning to pick my head up when on my tummy! I'm also learning to put some weight on my legs and I laugh and smile. Cool huh? I just wanted to add that although you see mom and dad in the description above...it has just been mommy and me for a while now since daddy passed away in January of 2010.

Sunday, June 29, 2008

June 29, 2008

I can't believe that June is almost over. In another month I will be a whole year old! Can you believe that? Well, I have been a pretty good boy for mommy and daddy this weekend. I haven't slept much at night which was usual and daddy had to work this weekend again with some overtime to try and help out with some bills and things. So, I haven't really seen him a whole lot this weekend but we have spent a little bit of time together this evening for a few minutes. My great great aunt foo foo is here though and my 3rd cousin Alyssa. I have been having fun with them and it's been fun having them here. Alyssa has been playing with me and thinks I'm just the cutest little baby and boy am I eating that up. :-) I get to see them all week so that will be really fun. It breaks up my day and I know it helps mommy out too with just having someone else there to humor me sometimes. :-) I hope to maybe get in the pool sometime this week with Alyssa so that should be something to look forward to. Mommy has a little sit down pool and Alyssa has had lots of fun cooling off in there the past couple of days. She's like a little fishy. Well, mommy and daddy have had a long day so I won't stay on here long but I will talk to everyone later. Goodnight everyone.
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