Hi, my name is David Joseph Chiappetta and I was born on July 27, 2007. I was born with something called holoprosencephaly and it means that my brain was not divided and I don't really have much of a brain. I do have a brain stem which controls my heart and lungs so that's good. My hypothalamus doesn't work either though so I can get either really hot or really cold very easily and quickly. Mom and Dad have to be my thermometer for me though which keeps them pretty busy at times. I also have a feeding tube in my stomach so I can eat since I can't swallow and I have a trache so I can breathe since I only have one nostril and it's blocked. Mom and dad have to suction me out too since I get mucuous buildup and have acid reflux. Sometimes I can keep them busy with that too. I also have Diabetes Insipidus which is a water issue and so I have to be given a certain amount of water with my medicines. If my sodium level is too high then that will cause me to have more seizures as well as if my temperature gets too high. I already have a seizure condition because of my lack of brain so some things can make it more complicated like high temperature and high sodium. See, my normal temperature range is 94 degrees to 97 degrees. Anything above that can cause me to have more seizures. See, I told you I keep my parents busy. :-) The doctors said though that I may not make it to birth and if I did I would only live a month or so. They also said that I will not be able to talk or walk or crawl or any of those normal baby things. Well, I'm here to tell you that I am4 years old now and I am learning to pick my head up when on my tummy! I'm also learning to put some weight on my legs and I laugh and smile. Cool huh? I just wanted to add that although you see mom and dad in the description above...it has just been mommy and me for a while now since daddy passed away in January of 2010.

Sunday, March 1, 2009

March 1, 2009

Wow...it's hard to believe that this is March already. Time has gone by quickly. Before you know it I'll be 2 years old. :-) Well...I have been doing pretty good. As always I have been keeping daddy and mommy very busy. I have been still very very very gassy and uncomfortable lately but mommy and grandma started giving me some baby food through my tube about 1 week ago and I've been doing pretty well on it. I am down to one can of formula throughout the day and then now I also get some baby prunes and carrots and pears and oatmeal. I feel more like a normal baby with having some food. And my skin used to be really really dry but since I've been on some baby food my skin is not nearly as dry. My new formula has Fiber in it and so my poopies were more formed and a little bit harder. It's funny because just yesterday I let a good log go and mommy was changing my diaper and dropped the turd right on the couch. But guess what though...it didn't make a mark at all. :-) And then of course I had to give mommy and daddy another good laugh last night after my bath because I was doing a lot of farting in the tub and as soon as mommy took me out and put me on the towel to start drying me off...yeah...I pooped right on the towel. So daddy had to run get another towel. It's so much fun around here sometimes and I'm sure you just love hearing my poop stories but sometimes they make for some good fun. :-) Since mommy has been giving me pears though now instead of apples...my poopies are getting softer now. Ok well I'll let mommy go now so she can get ready and feed me again soon so I'll catch you all later. Hope everyone is good.



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