Hi, my name is David Joseph Chiappetta and I was born on July 27, 2007. I was born with something called holoprosencephaly and it means that my brain was not divided and I don't really have much of a brain. I do have a brain stem which controls my heart and lungs so that's good. My hypothalamus doesn't work either though so I can get either really hot or really cold very easily and quickly. Mom and Dad have to be my thermometer for me though which keeps them pretty busy at times. I also have a feeding tube in my stomach so I can eat since I can't swallow and I have a trache so I can breathe since I only have one nostril and it's blocked. Mom and dad have to suction me out too since I get mucuous buildup and have acid reflux. Sometimes I can keep them busy with that too. I also have Diabetes Insipidus which is a water issue and so I have to be given a certain amount of water with my medicines. If my sodium level is too high then that will cause me to have more seizures as well as if my temperature gets too high. I already have a seizure condition because of my lack of brain so some things can make it more complicated like high temperature and high sodium. See, my normal temperature range is 94 degrees to 97 degrees. Anything above that can cause me to have more seizures. See, I told you I keep my parents busy. :-) The doctors said though that I may not make it to birth and if I did I would only live a month or so. They also said that I will not be able to talk or walk or crawl or any of those normal baby things. Well, I'm here to tell you that I am4 years old now and I am learning to pick my head up when on my tummy! I'm also learning to put some weight on my legs and I laugh and smile. Cool huh? I just wanted to add that although you see mom and dad in the description above...it has just been mommy and me for a while now since daddy passed away in January of 2010.

Tuesday, June 16, 2009

Learning to use baby walker

How amazing is our God! Look at me would you? This is a video of me trying and learning to use my baby walker. Not too bad. I am also moving my arms feeling and playing with the toys on the walker. If you watch very closely there are two brief times where I do try to make the walker go forward. I know I still need a lot of work but this is a start and you just keep watching and see how much better I progress...I'll tell mommy to keep the camera rolling. Enjoy this one for now.





video

3 comments:

JoAnn said...

What a mighty God we serve! Guess he needed those sneakers to move better. He is amazing!

Anonymous said...

Makes me want to help him push!!!!
Love you, grandma Sharon

Michele said...

Hey, David! I am sooo proud of you! You are going to be walking before we know it!
Love, Auntie Michele