Neurologist appointment

Hello everyone. Just writing and checking in to tell you all that I had my neurologist appointment on Thursday and things went pretty well. We are now going to make the switch of weaning me off my Phenobarbital and put me on Topamax. The doctor said that it will probably help me be a little more alert and interactive and might be able to participate more in my different therapies and such. Just to let you know though this is a 6 month long process to get me off my phenobarb and on to the topamax. It has to be a slow weaning process because I've been on it for so long. Also he said there could be some possible break through seizures until the topomax reaches the level in my body that it needs to while decreasing the phenobarb but it will all work out. Mommy is a good sport and we'll make it through this. I go back to see the neurologist in 3 months which will be October 1 just to see how things are going with the whole process. Just another thing mommy has to try and keep straight because there is a certain formula that has to be followed each and every week through this whole process for 6 months until the phenobarb is out of my system. Mommy is still using the Melatonin and we are starting to see a little difference! I actually sleep for at least a solid 3 to 4 hours now! Again though this all takes time and we have until October as well to see if the Melatonin is going to work for me. So we'll see what happens. I wanted to mention too that we got word that I can no longer recieve my WV Medicaid because daddy makes $30 more than what's allowed. Yeah...it's pretty stupid but mommy is trying her best to see what she can do and so now we have to pay for every doctor appointment that I have like the neurologist we just saw and my pediatrician at the end of the month and so forth and so on. So, that's the latest news on what's going on here with me. Hope this day finds everyone well.